Hmm.
1. Scheduled for neurosurgery on Monday 9/14. I will have at least 2-3 days of downtime post op. I hope that I write a message thereafter. Surgeon Dr. T. Schwartz implies that the
tumor is definitely operable. Not in the best spot (is there a best spot for a
brain tumor?) but in an operable location. He plans to remove all of it that is visible. Will probably affect right side of my body for weeks, month? Should not affect language, cognition, personality. Should not. Surgery at Cornel Wiell in NY. Plan to do joint treatment with MSKCC.
2. No significant causes. 5 days ago was my first seizure. I get maybe 2 headaches per year before this. I have probably taken 5 aspirin/tylenol/ibuprofen in the last 5 years. No
brain scans before. 2+ years ago I used to solder electronic components to make amplifiers, DACs, etc. That was probably soldering for 2 hours/week for 3 months. I used fans and simple filters while soldering. If there was an external cause, that is currently the only one that I can think of. I have been primarily eating Chinese produced vegetables for the last 2 years particularly red peppers and tomatoes that anecdotal evidence implies have higher pesticide counts but I doubt that would have/could have been the cause. 5-7 years ago I went through an experimental drug stage 2-3 uses each of e and mushrooms. (Will probably delete that information pre op for legal reasons).
3. During surgery will do cell biopsy. Currently there are no plans for immediate radiation or chemo therapy. Post op MRI. 3 month MRI. 6 month MRI. Will have cell sample reviewed by at least 2 oncologists. I will do my best not to have chemo. I should make a written statement to that effect.
Post Op Plans:
4. Ketogenic diet. Did 1 day fast 2 days ago and then placed myself on a ketogenic diet for the last 2 days (9/9-9/10). Surgeons imply that at least for the time being my primary concern should be removing the
tumor. Afterwards ketogenic diets and other supplementation can take hold. Right now the growth is too large. This much I can understand.
Therefore with impending surgery T-3days I broke the ketogenic diet with a chicken and lamb over rice though I refrained from the rice. For the next 2 days I will eat the things I'd like to eat, though I will be somewhat ketogenic about it. For 2 years in Mongolia I wasn't able to eat the things I enjoyed eating (though I ate head after head of garlic, curcumin, grass fed meat, etc.) and I might not be able to enjoy those things ever again so I'll spend 2 days eating what I want. Preferably sashimi. Quality of life is pertinent.
Post op I will implement a ketogenic diet. I am not sure if I can do it at the hospital--I don't really have that much time to talk to them about it, but I will try. Else, within 2-3 days after surgery if I am myself.
Post op I will resume supplementation. Surgeon and oncologists suggest that I should refrain for the next 2-3 days in case there are blood thinners, etc. I can accept that advice for the time being.
To reduce neurological stress I will take post op:
a. Fish oil.
b. Beta Glucans
c. IP6
d. Boswellia
e. Selenium (dosage, absorption??)
f. melatonin?? (I had been taking 3-5 mg nightly for the last 2 years)
Dosage suggestions? 120 lbs.
Our results showed that Se improved cerebrum and cerebellum MMI-induced damages in suckling rats. Moreover, we concluded that Se is an important neuroprotective element that may be used as a dietary supplement against brain impairments.
PMID: 19615434 [PubMed - as supplied by publisher]
Se supplementation significantly ameliorated all alterations induced by ICV-STZ in rats. Our study reveals that Se, as a powerful antioxidant, prevents cognitive deficits, oxidative damage and morphological changes in the ICV-STZ rats. Thus, it may have a therapeutic value for the treatment of SDAT.
Not exactly
brain cancer or post op surgery but positive for neuro health.
5. There is a noscapine trial for multiple myelomo that is in the recruiting stage at Cornell Wiell. Something worth investigating. Possibly compassionate use. Seems to be low, if 0 toxicity. Beta glucan trials at MSKCC completed. Meeting them tomorrow at 9:30, I believe.
http://www.cancer.go...o_CDR0000378186. Seems like all the Beta glucan cancer clinical trial research is being done at sloan.
6. Purchased a considerable amount of resv from board sponsor. Will probably take. Hopefully gets shipped soon or is shipped.
7. Of Indian descent--had considerable curcumin in diet for last 25 years. Will probably supplement curcumin post op.
8. 23andme test kit came in the mail today. Will try to ship it out tomorrow. Don't think I will find anything interesting there but whatever.
9. Vitamin c, e, etc. research tomorrow.
10. cryonics.
Tired,
f/R
Edited by garlicknots, 11 September 2009 - 06:42 AM.